Life crashes in on you. Reminding you there is a power greater than ourselves out there. There is a story behind these words of course, and of course I am going to share them. If only to help or give hope to one person out there that when life knocks, answer with faith, you will be okay. Now where to begin is the question?
For now, the last three weeks of my life. I want to share this part because it is the freshest cut in one more silent war some people face. It started off with a visit to my Neurologist. She noticed my iron was low. It was at 9.6. This did not send up any red flags until she said, “I am going to recommend you to a Hematologist.” Everything she said after that is pretty much a blur.
For those of you who do not know, a Hematologist is a blood Doctor. He is what I call, a specialist’s, specialist.
I also had to start Physical Therapy. Don’t worry, we will get back to the Hematologist, or Hemo for short, soon enough. So I also have Physical Therapy three times a week. Just to give anyone who reads this an eye into my life. I also go to a place called Bridges on a daily basis. Not to mention at least three other irons in the pan over fire that I will get into later.
After waiting two days to hear from the Hemo, I finally called, and was told the team would look over my case and get back to me in seven to ten days. I said okay, I could see that. However, I am an impatient person, well, when a Higher Power wishes to play games, they can and will. I got a phone call the next day that the Hemo, Dr. K, wanted to see me by the end of the week.
All I could say was, “Wow.”
All I could think was, “What the fuck did he find in my bloodwork?”
The appointment came, I found out that it was either my Celiac Disease or I was bleeding internally. Which if it is the latter, I get to go back to the Gastroenterologists, Gastro, and go from there. I found out my iron was almost to 0. That I would need iron infusions to find out which one it is.
Well being the researcher I am and someone asked me, “Well what is your iron supposed to be at?” Great question right? I found out it is supposed to be 12.0 to 15.5 grams of hemoglobin per deciliter of blood. So I would say almost 0 would be pretty low on the iron scale.
Dr. K said that someone would be getting back to me by Monday to set up my appointment. Again, two days had passed and I finally called Dr. K’s office to find out what was going on. My insurance was holding it up.
Dr. K’s office had called my representative three times and finally called the supervisor. By this time it was late Wednesday and I was getting weaker and having some shortness of breath. I could have gotten really upset, instead I called my caseworker. I gave her Dr. K’s phone number and asked her to call so it could get approved for me to have this infusion done.
Meanwhile, I am feeling my health slip through my extremities. What could I do except accept and wait what my higher power was trying to teach me at the time. Patience. Oh, what a doozie, patience. The hurry up, I want to learn patience now type of patience.
What I must mention that also helped me on Wednesday, was my neighbor. When I explained to her what was going on, she asked, “Don’t you feel some type of way about that?” That is how tired I was, I was not thinking straight enough to get angry over my insurance not doing its job. I did feel some way about the situation, thus why the caseworker was called in. Just thought I would explain the fog I was in on Wednesday.
Wednesday came to pass and I woke up Thursday to go to Bridges then to Physical Therapy. Talk about a full day. By 8:30 I was calling my caseworker after I caught the bus to get to Bridges. (I promise, I will explain why Bridges is so important to me at a later date.)
For me, it is important to keep a schedule. It keeps me balanced. It is rare, I have to be really sick, to miss my schedule.
I had meetings all morning at Bridges, and slept through most of them if you want to know the truth. I was that tired. I am sure there is someone reading this that can understand what I am saying of being that tired. I should have stayed home, but I had Physical Therapy that day already.
A miracle happened on the way back to the bus stop. On the walk to the bus, I found out I had been approved. My caseworker had come through. Actually I believe it is a few things, my caseworker, the staff at Dr. K’s, and of course my Higher Power.
I did finally get my iron infusion Friday.
So why did this new journey in my blog start? You may ask. Right now, my medical health may prevent me from working on my book right now, however a blog, you can take a couple of days to write a post and put it out there for your readers to know you are okay. Also, C at Bridges, started a journal group, and that is why I really started over this not blog format.
Right now, I need to write. Why not make it public? Share with the friends I have made on this blog so they are not wondering where I disappeared to and I get my group done. I thought to myself, someone else may be going through what I am going through right now. Maybe I can help, learn, grow through this new format.
You, my followers will also get to see Pandora’s Order and The Humanitarian Fund come alive.
It is Sunday here where I reside, my cat is on my lap and I am excited about this new platform this blog is taking. I do hope you will join me on this journey.
Aingealicia